Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
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SHOWNOTES:
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
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Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support#Throwback: Disability Representation In The Media w/Gail Williamson (Talent Agent & Mother)
#THROWBACK: Tell Me You're Raising A Child w/DS Without Telling Me You're Raising A Child w/DS
#THROWBACK: "A Life Meant to be Lived," w/Karen Gaffney (Self-Advocate & Open-Water Swimmer)
#THROWBACK: Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)
#THROWBACK: "More Than A Moment," w/Kelli Caughman
144. How To Keep The Holidays Happy
143. Our 2021 Holiday Gift Guide!
142. Our Kids are #WorthTheConversation (Sexual Abuse, Safety, & Body Autonomy in the DS Community)
141. Finding “Joy” Through International Adoption (ft. Rebekah Lyons)
140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss)
139. Motherhood, Advocacy & More! ft. Alex Rivera, founder of For Kids By Kids
138. What do you wish you knew when you got your child's diagnosis?
137. How To Be A #BossLady ft. Trista Kutcher (self-advocate with Down syndrome!)
136. Health & Fitness.. but make it simple. (Ft. Megan Libassi, Oxygen Fitness Coaching)
135. Let's Talk Potty Training and Down Syndrome! (ft. Dr. Lina Patel, PsyD)
134. Social Stories for Kiddos with Down Syndrome (ft. Dr. Lina Patel, PsyD)
133. BTS Pt 4 - So how's school (really) going for us and our kiddos? (updates, advice, + more)
132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)
131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow
130. BTS Pt 1 - Q & A with Listener Questions!
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