Our Young Onset series begins with a conversation between Matt Dineen, a father of three and husband from Ottawa, Ontario and Jillian McConnell, guest host and Knowledge Mobilization lead with brainXchange. Nine years ago, Matt's wife Lisa was diagnosed with Behavioural variant Fronto-temporal dementia (bvFTD) at the age of 43.
Matt and Jillian discuss what his experience has been like including: how Lisa was diagnosed, the challenges surrounding a diagnosis and symptoms at such an early age, how it impacted him, Lisa and their children (who were ages 12, 10 and 8 at the time) and what strategies and resources Matt found most helpful early on in Lisa's diagnosis and now, years later.
For more information:
Transitions: Shared Care in Dementia
Transitions- A Rural Dementia Resource for rural communities
Dementia, Stigma and Taking Action –
Transitions: Doing Our Best- Part 2
Transitions: Doing Our Best Part 1
Navigating the System
The Healing Conversation
Culture and Communication - The System Journey
Town Hall Discussion on Human Rights and Dementia
Include Us! Human Rights and Dementia
Get Real! Dementia, Gender, Age
Absolutely Yes! Dementia and Human Rights
Relationships and Reaching Out
Reflection, Reframing and Reimagining
Marshalling resources within oneself and within community
Work, Life : Adapting to Change
Reinventing Relationships: An Interview with Guy Chadsey
Promoting the Voice of Lived Experience: A Panel Discussion
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