Ep 041: Raising Medically Fragile Kids

Juli Henderson is a highly trained vocalist, respected voice teacher and owner of JH Voice Studio, physician’s wife, mother of five adult children, and newly minted grandmother. She grew up moving frequently as a military dependent, but has called San Antonio, Texas home for 36 years. The In Our Arms blog is her passion project, launching in February 2021 to share the story of Juli’s late son, Robert. As the mother of a child with disabilities who passed at the tender age of eighteen, Juli’s writings give hope to hundreds of readers, including a private Facebook group where members share resources and support. She is extending her impact by her involvement in resource projects such as her recent launch of the In Our Arms “Breathe” candle in collaboration with a purpose-driven brand, School Scents. When not writing or teaching, Juli volunteers in the community on nonprofit boards and speaks in churches and schools about her “Life unexpected.” 

Listen to this inspirational Parenting With Impact episode with Juli Henderson about parenting medically fragile kids, and how to focus on what matters. Join Elaine as Juli shares her joy and privilege of parenting her son, Robert. 

Here is what to expect on this week’s show:

• Don’t go down the research rabbit hole until you have a diagnosis
• Focus on aiding in their journey, instead of trying to fix everything
• Find support where you can and learn to ask for help

Links Mentioned:

https://www.inourarms.blog/

NORD- National Organization for Rare Disorders

https://rarediseases.org/

Connect with Juli:

In Our Arms Blog Playlist

Facebook: https://www.facebook.com/InOurArmsBloghttps://impactparents.com/blog/complex-kids/complex-kids-no-clear-diagnosis/

@InOurArmsBlog

Instagram: https://www.instagram.com/inourarmsblog/?hl=en

@inourarmsblog

Want to know more about Raising Complex Kids with No Clear Diagnosis?

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