Cache's Story - Metachromatic Leukodystrophy (MLD)

Cache is a husband, and a father of 3.  His family received devastating news last year, when his oldest daughter Lia fell off of a trampoline, and through a series of events, it was discovered that she has a genetic disorder called MLD.  Cache tells us the story of how the trampoline ended up saving her life and her younger sister, Hazel.  He talks about the treatment they are having to do with their 2 daughter's.  Lia get's treated in the US, while Hazel is in Italy with her mom, receiving a new gene therapy treatment.  

This family is amazing.  To sit and listen to Cache while he told us his story and then continued to educate us on modern medicine and genetics was so interesting.  We loved this interview and hope to have Cache (& Mandi) come on again for an update in the future.  

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