Setting ‘big’ goals and being flexible with NDIS funding
In this episode Mel chats with Heather Cox, a Sydney-based marketing professional and mother of two daughters. Heather's youngest, six-year-old Arianna, has Sotos syndrome, a rare genetic condition characterised by overgrowth and delayed development. Heather is a gun at NDIS goal-setting and shares how she's made Arianna's NDIS plan work for their family. Spoiler alert: sometimes this means choosing the playground over therapy sessions.
Links to family support organisations:
Plumtree: https://plumtree.org.au/
Kindred: https://kindred.org.au/
Sotos Syndrome Australasia: https://sotos.org.au/
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