LH114 — Coping with Adversity

My guest for this episode is Paige Heron. I’ve tried to get her on this podcast for a long time to discuss a number of different topics but we landed on a topic that has been and continues to be central to her life, chronic illness, and it’s something that many people don’t understand, especially what is essentially an invisible illness. I too knew very little about the experience of dealing with a chronic illness initially but accompanying Paige to various medical appointments, reading about her conditions, and most importantly listening to her provided me a deeper insight into her experiences and how best to support her. That’s what we discussed during this episode.

We delve into Paige’s early life, the physical changes she experienced, her experiences with the medical profession, and we discuss what to do if you have similar experiences or if someone you love does, making sure to seek out appropriate medical expertise and guidance.

Quotes from this episode:

“No other disease in the history of modern medicine, has been neglected in such a was as Ehlers-Danlos Syndrome” — Professor Rodney Grahame

“Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken into the reality of our bodies, stirred from dreams of ourselves as we used to be, and the futures we imagined we’d have.” ― Michael Bihovsky

“When you are frustrated with me because of the things I can not do…
…Just imagine how frustrated I must be because I’m not able.” — Count My Spoons

Links from this episode:

Ehlers-Danlos Society

Ehlers-Danlos Support UK