https://302.buzz/PM-WhatAreYourThoughts
Ehlers-Danlos Syndrome…. Ever hear of it? Well, they say that it’s the most common illness that you’ve never heard of. Jayne Mattingly makes a return appearance and gives Dr. Gaggino an update on her health and life since she was last on the podcast. She will talk about how her condition has progressed and gives an honest account of what life is currently like for her. It’s emotional, it’s raw, and it’s real.
[00:33 -13:39] What is Ehlers-Danlos syndrome (EDS)?
[13:40- 24:23] What Impact Has EDS Had on Jayne's Life?
[24:24 -32:10] What Are Some of the Difficulties Associated with EDS?
[32:11- 39:09] What Are Some Ways to Support Those with EDS?
[39:10 - 46:59] Closing segment Takeaway.
***Don’t forget to sign up for Dr. Gaggino’s February 24th Beta Training
for Professionals who want to re-think the mental health services they offer
Up Your Game - Improving Kid's Mental Health Care
Where to get in touch with Jayne
Instagram: @jaynemattingly
Twitter: @jayneimattingly
Linkedin: jayne mattingly | Search | LinkedIn
Links to resources mentioned on the show
Health Equity for Children and Youth with Special Health Care Needs: A Vision for the Future. https://publications.aap.org/pediatrics/article/149/Supplement%207/e2021056150H/188217/Access-to-Services-for-Children-and-Youth-With?autologincheck=redirected
The AND Initiative: www.theandinitiative.com
Book: Disjointed – Ehlers Danlos Syndrome
Other Pediatric Meltdown episodes you may like:
Episode #62
Eating Disorders: Recovery Coaches Strengthen the Healing Team
https://302.buzz/62RecoveryCoaches
Episode #63
Eating Disorders: Feeding Our Kids
https://302.buzz/63FeedingOurKids
Key quotes for Twitter:
“I have really very little independence...the small things are where the grief comes in”...Jayne Mattingly
“The world is really actually not as accessible as you think until you become disabled".. .Jayne Mattingly
THANK YOU FOR YOUR SUPPORT!
Pediatric Meltdown was listed as a Top 20 Pediatric Podcast on FeedSpot.
If you’d like to connect with me, you can Tap the “What Are Your Thoughts” button at the top of the notes or you can find me on LinkedIn, Facebook, Instagram, and Twitter, or email me at gagginol@medicalbhs.com or gagginol@yahoo.com. To learn more about me visit https://www.medicalbhs.com/
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