Ep168 - NICU Graduate and Navigating the Medical System with Ease with Tanisha Burke Wormley

Can you imagine getting a diagnosis that you baby is not expected to live due to their rare birth defect?

 

Today’s guest experienced a miscarriage at 8 weeks and then went on to conceive her rainbow baby.  At her 20 week ultrasound she received the news no parent doesn’t want to hear that her son Jaleel had a rare birth defect called Lower Urinary Tract Obstruction. LUTO is life-threatening as it damages the unborn baby’s kidneys, bladder, and causes underdeveloped lungs due to low or no amniotic fluid because of blockage in the urinary tract.  Tanisha Burke Wormley persevered with her pregnancy after being told her son Jaleel could be stillborn due to his underdeveloped lungs and kidney damage.  But God!  God saw fit for Jaleel to not only survive delivery, but also a 157 day NICU stay,  2 ER re-admissions, and 11 surgeries. 

In this episode Tanisha and I share experiences of having rainbow babies with complex medical needs, how she is managing life pregnant with her rainbow baby girl and a toddler with Stage 5 Chronic Kidney Disease. 

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This episode is for you to listen to if you are a mother with a child with complex medical needs and wanting to grow your family.  This episode is for you to listen to if you have had a miscarriage and/or a NICU experience.