Episode 36 | Sarc Fighter Janet Mockovciak is giving it her all.

Janet Mockovciak is in her 60's but she may have been fighting Sarcoidosis since she was a teenager!  Janet has been an active outdoor person having traveled to Africa to follow gorillas, and Patagonia where she participated in all kinds of outdoor adventures.  She will talk about how sarcoidosis has forced her to curtail her explorations -- and made her adopt a new normal.  But she isn't giving up!  At the end of the recent ski season, she took to the slopes with an oxygen tank in her backpack.  Go Janet! 

 

Janet is a fellow member of the Patient Advisory Council for the Foundation for Sarcoidosis research.  As such she is helping to bring the patient voice to the Foundation to help ensure that our voice as patients is heard and acted upon by those on the front lines of fighting the disease. 

Don't forget the upcoming FSR Summit on June 12 &13, 2021.  Here is a link to sign up.

https://www.stopsarcoidosis.org/virtual-patient-education-summit-2021/

I recently moderated a conversation for FSR about dealing with prednisone.  Almost all of us have dealt with it at one point or another.  One doctor on the panel even called it, "poison."

Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

You can listen on You Tube as well.  https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com

Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/

Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/