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The CFRI CF Community Voices Podcast

The CFRI CF Community Voices Podcast

Health & Fitness

Parenting with Cystic Fibrosis (Video)

Parenting with Cystic Fibrosis (Video)

2023-10-03
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Carl Robinson and Matt DeFina discuss the rewards and challenges of raising children when one has CF. Moderated by Mary Helmers, RN, they describe their different paths to parenthood, and answer questions. This episode is a recording of a webinar from September 2023.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences and Viatris.

view more

More Episodes

CFRI-Funded Research: Advancing the Search for a Cure
2022-11-23 7
Panel Discussion: The Impact of CF on the Siblings (Video)
2022-11-21 5
CF-Related Bone Disease: Current Evidence and Future Directions - Melissa Putman, MD, MMSc
2022-11-21 6
Advocacy in the CF Realm - Jacob Fraker, MSW, Diane Shader Smith
2022-11-21 5
Panel Discussion: The Impact of CF on the Siblings (Audio)
2022-11-21 11
CF-Related Bone Disease - Melissa Putman, MD, MMSc (Audio)
2022-11-21 6
Advocacy in the CF Realm - Jacob Fraker, MSW, Diane Shader Smith (Audio)
2022-11-21 7
CF in Pakistan - A Personal Story
2022-10-26 8
The Challenges of Aging for People with CF - Richard Simon, MD
2022-10-11 15
Oral Health Considerations for Individuals with CF – Donald Chi, DDS, PhD
2022-10-11 6
Novel Models of CF Mucus Plugs for Testing Phage and Tailocin Therapy – Gregory Burkeen, PhD Candidate
2022-10-11 5
Nanotechnologies to Enable Cystic Fibrosis Gene Therapies – Steven Jonas, MD, PhD
2022-10-11 8
Selective Targeting Distal Small Airways by AAV Vectors (...) – Xiaopeng Li, PhD
2022-10-11 10
The Challenges of Aging for People with CF - Richard Simon, MD (Audio)
2022-10-11 14
Oral Health Considerations for Individuals with CF – Donald Chi, DDS, PhD (Audio)
2022-10-11 11
Novel Models of CF Mucus Plugs for Testing Phage and Tailocin Therapy – Gregory Burkeen, PhD Candidate (Audio)
2022-10-11 7
Nanotechnologies to Enable Cystic Fibrosis Gene Therapies – Steven Jonas, MD, PhD (Audio)
2022-10-11 5
Selective Targeting Distal Small Airways by AAV Vectors (...) – Xiaopeng Li, PhD (Audio)
2022-10-11 4
Joints in Cystic Fibrosis - Dr. Beth Clarke
2022-10-05 7
CFRI’s 35th Cystic Fibrosis Education Conference - Awards Celebration on July 30, 2022
2022-09-21 4
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