#097: AFAF with Marissa Cirbo on Communicating Amidst Chronic Illness

Join us for a special episode of Asking for a Friend with TalkDoc as we delve into the world of Multiple Sclerosis (MS) in honor of MS Awareness Month. Our guest, Marissa Cirbo, bravely shares her personal journey with MS, shedding light on the challenges and triumphs she has faced since her diagnosis in 2022.

Marissa takes us back to the beginning, recounting the unusual symptoms that first appeared after a trip to Mexico and the journey of discovery that followed. She discusses the frustrating experience of being initially misdiagnosed and the emotional rollercoaster of shock and grief upon receiving the correct diagnosis of MS. Throughout our conversation, Marissa eloquently navigates the complex medical maze she encountered and shares valuable insights into self-advocacy and finding a support network.

One of the key takeaways from our discussion is the concept of MS as a "snowflake disease," highlighting the unique experiences and challenges that each individual with MS faces. Marissa's story emphasizes the importance of MS Awareness Month in raising awareness about these complexities, particularly the often invisible symptoms that can be so difficult to communicate.

We also explore the impact of chronic illness on relationships, emphasizing the need for open and honest communication. Marissa shares practical advice for those who are newly diagnosed with MS and their families, including tips on setting boundaries and increasing self-awareness in communication.

Throughout the episode, Marissa's resilience and proactive approach to managing her MS journey shine through, including her involvement in a support group for newly diagnosed individuals. Join us as we discover hope, healing, and meaningful connections amidst the challenges of chronic illness, and learn valuable communication strategies from Marissa's inspiring story.

Music by epidemic sound.

SHOW NOTES:

Experts :  National MS Society, Multiple Sclerosis Association of America

Resources/Links: 

National Multiple Sclerosis Society https://www.nationalmssociety.org/

The National MS Society's vision is: A World Free of MS. The Society's mission is: We will cure MS while empowering people affected by MS to live their best lives. 

Multiple Sclerosis Association of America (MSAA) https://mymsaa.org/

The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support.

Can Do MS: https://cando-ms.org/

Free programs and resources help people living with multiple sclerosis and their care partners make each day the best it can be. Learn how MS can impact your life, find motivation and personalized guidance to overcome challenges and build a positive support network.

Lived Health: https://www.livedhealth.org/

A free, patient-led online video resource shining light on long-term health conditions. We guide fellow patients through diagnosis, treatment and lifestyle.