Episode 109: Babies With Kidney Disease: Navigating Uncertainty During Pregnancy Onwards

Welcome to another episode of Diary of a Kidney Warrior. This podcast episode is the first in a series that takes a deep dive into the world of pregnancy and Chronic Kidney Disease (CKD). Our expert guest, Dr. Jan, examines the nuances of a kidney damage diagnosis of the unborn baby during pregnancy and the onset of uncertainties that this health revelation carries.
In this comprehensive understanding of CKD, Dr Jan addresses the considerable challenges associated with diagnosing the disease. The episode further explores the emotional turmoil parents endure upon their child's CKD detection and the importance of a multidisciplinary support team surrounding the affected family.
As they delve deeper, we grasp the implications of a baby with one or two compromised kidneys, the risks, and its effect on their life quality. The narrative examines how both kidneys damaged by CKD can escalate to later disease stages, potentially necessitating kidney replacement therapy - dialysis or transplantation.
The discussion unfolds touching upon the areas of neonatal nephrology, the significant impact of CKD on a child's growth, development, and learning abilities, with emphasis on the importance of kidneys for overall body health. Furthermore, Dee and Dr Jan explore the opportunities and limitations of neonatal dialysis, illuminating the complexities of medical interventions in newborns, especially those at extremely low birth weights.
In conclusion, Dr Jan echos the paramount importance of acknowledging these uncertainties and advocate for extensive patient support, peer groups, and committed charities. Final remarks introduce useful resources, such as InfoKid, to aid informed decision-making in healthcare, hence underscoring the need for ample education and a robust support system for CKD patients and caregivers.

 

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infoKID provides information for parents and carers about kidney conditions in babies, children and young people.

 

https://infokid.org.uk/

 

If you were affected by any of the issues raised in this episode contact:

 

Kidney Care UK

 

•           Website: www.kidneycarekuk.org

•           Email: info@kidneycareuk.org

•           Tel: 01420 541 424

•           Facebook: www.facebook.com/kidneycareuk.org

•           Instagram: @kidneycareuk

•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

 

To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

 

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.