Episode 45: This is for all the marbles

The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders so, together, we can solve problems impacting the autoimmune and autoinflammatory arthritis community.  

 

Join Tiffany Westrich-Robertson, CEO, as she explains that each person - and our associated roles - are like marbles. If each stakeholder group is a color, and only one color is in the jar, we will never develop solutions that matter to all stakeholders involved in the problem. So we are evolving the show - and our associated online AiArthritis Voices platform, which will now be available for all stakeholders who wish to participate in the ongoing conversations. 

 

 

Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!

 

If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.

JOIN TODAY!

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).

 

Show Notes: Episode 45 – “For All The Marbles”

 

00:53 - Tiffany welcomes listeners

02:36 - Today’s topic is an open invitation to all stakeholders in the AiArthritis community to get involved with our mission of trying to solve the most pressing issues impacting disease management and the journey of patients

04:15 - We want all the people involved in this community - not just the patients - to come to the table and help us address the issues our organization is trying to tackle

05:19 - Tiffany explains the AiArthritis logo and how it embodies the organization’s policy of bringing all voices to the table

09:46 - We need as many patient voices at the table for conversations as possible because Tiffany has not had the same experience with her disease that others may have had

11:28 - The organization and the Voices 360 show are evolving to bring more voices into the conversations

14:00  - On October 12, World Arthritis Day, the AiArthritis Voices online platform will open to all stakeholders. Previously it was only available for patients and parents of juvenile patients.

14:42 - All patients and parents of juvenile patients are invited to join our sister site AiArthritis Voices at aiarthritis.org/aiarthritisvoices and meet any of the Voices 360 co-hosts or participate in the conversations about our episode topics

15:15 - All other stakeholders can also join the AiArthritis Voices Forum by visiting aiarthritis.org/aiarthritisvoices

15:41 - Tiffany thanks listeners and invites them to get involved in any of our projects by visiting us on the web or all social media platforms @IFAiArthritis