INSIGHT - U.S. CAPITOL ATTACK AFTERMATH & A FILM THAT’S RADICALLY OPENING EYES AND HEARTS
U.S. CAPITOL ATTACK AFTERMATH & A FILM THAT’S RADICALLY OPENING EYES AND HEARTS
Pictured L-R (Amanda Cali, Mark and Odette Schwegler)
Odette Schwegler, Co-Executive Producer of the new phenomenal documentary Tin Soldiers, discusses the journey that began a decade ago when the paths of two mothers crossed, one an American mother of a child with an ultra-rare condition, the other a South African journalist and mother of four who became consumed with a rare disease named FOP. Mark and Odette discuss the films process, the lives the disease and film have touched, the on-going mission of educating doctors and vital decision makers on Capital Hill.
Imagine your body seizing up. Unable to walk, bend over or not being able to simply wave hello or goodbye. Hillary Weldon and daughter Whitney Weldon know all too well how Fibrodysplasia Ossificans Progressiva (FOP), an extremely rare degenerative disease has impacted their lives. And no better conduit to enlighten the world then through a riveting full length documentary film they created aptly named, “Tin Soldiers”. Odette Schwegler and Amanda Cali are the Executive Directors and Assistant Producers are Hillary and Bill Weldon. Movie trailer: https://www.facebook.com/watch/?v=2163573907045300
About: Fibrodysplasia Ossificans Progressiva (FOP) is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone (ossified), forming bone outside the skeleton (extra-skeletal or heterotopic bone) that constrains movement. This process generally becomes noticeable in early childhood, starting with the neck and shoulders and proceeding down the body and into the limbs.
Questions, please email: info@tinsoldiers.org
Special acknowledgements to the invaluable help and contributions of Theresa Reid – Beyond Organics Howell NJ, Terry Eleftheriou of Shipwreck Grill – Brielle NJ.
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