We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support96. Handling Holiday Expectations
95. What Are You Thankful For?
94. IEPs during Covid-19, ft. IEP Lawyers Amanda Selogie & Vickie Brett
93. The (Older) Sibling Perspective, ft. Pat Valentine
92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing
91. Putting the "Social" In Social Distancing w/Jessica Hunter & Larkin O'Leary
90. How To Advocate Right Where You Are
89. Let's Talk About Transitions. ft. Kenzie Clark
88. (Un)learning The Advocacy Language
87. Life Update: Moving Mishaps + More!
86. Palliative Care & Parenting Our Heroes w/Jen Bartz
85. Is Inclusion Always The Best Option?
84. Michelle Sie Whitten on Creating the Global DS Foundation, Media Representation, + More
83. So Everything's Going Wrong, Now What?
82. All things Speech & Feeding w/Shandy Laskey (CCC-SLP)
81. Pregnant In A Pandemic w/Abby Green
80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy
79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy
78. Building Trust (not barriers) w/Your Child's IEP Team
77. Back to School or Back to the Screen? (Covid-19 & the Upcoming School Year ft. Dr. Spinazzi)
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