We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support141. Finding “Joy” Through International Adoption (ft. Rebekah Lyons)
140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss)
139. Motherhood, Advocacy & More! ft. Alex Rivera, founder of For Kids By Kids
138. What do you wish you knew when you got your child's diagnosis?
137. How To Be A #BossLady ft. Trista Kutcher (self-advocate with Down syndrome!)
136. Health & Fitness.. but make it simple. (Ft. Megan Libassi, Oxygen Fitness Coaching)
135. Let's Talk Potty Training and Down Syndrome! (ft. Dr. Lina Patel, PsyD)
134. Social Stories for Kiddos with Down Syndrome (ft. Dr. Lina Patel, PsyD)
133. BTS Pt 4 - So how's school (really) going for us and our kiddos? (updates, advice, + more)
132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)
131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow
130. BTS Pt 1 - Q & A with Listener Questions!
129. How To Keep Your Kids with DS Healthy While Traveling ft. Dr. Spinazzi
128. What To Expect From Inclusive Settings
127. All Things Feeding Your Kiddos w/Down Syndrome, ft. Sara & Sabrina (Able Appetites)
126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)
125. The Third Way
124. Self-Advocacy, Mentoring, + More w/Johanne Meyer
123. Finding Your People
122. Cohome: An Inclusive Housing Program That Everyone Should Know About!
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