We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support121. "Different-- A Great Thing To Be!" by Heather Avis (ft. the Avis fam!)
120. Happy Father's Day! (Ft. Our Husbands)
119. Tell Me You're Raising A Child w/DS Without Telling Me You're Raising A Child w/DS
118. Life As An Olympian, Mother, & DS Advocate (Ft. Elana Meyers Taylor)
117. Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)
116. "Forget Me Not" Documentary, ft. Olivier & Hilda Bernier
115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)
114. Let's Talk PT! (Ft. Dr. Emily Heisey, Pediatric Physical Therapist)
113. Happy Mother's Day! (Ft. Our Very Own Moms)
112. Disability Representation In The Media w/Gail Williamson (Talent Agent & Mother)
111. Dual Diagnosis + Autism Acceptance Month, ABA, & More!
110. Parenting A Teenager w/Down Syndrome, ft. Jen Jones
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108. The One Where We Interview Our Kids
107. Cookies & Confidence w/Collette Divitto (Collettey's Cookies)
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105. The Grace Effect w/Grace & Linda Strobel
104. Becoming An Ironman w/Chris Nikic & Coach Dan Grieb
103. An Important Conversation About The Black Disabled Lives Matter Movement w/Elena Fong
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