We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support209. End of School Year Reflections
208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)
207. ‘Peter Pan & Wendy’ Star: Noah Matthews Matofsky
206. Nurturing Meaningful Connections With Our Kids
205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko
204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward
203. Beyond Checking A Box
THROWBACK: Politics & Down Syndrome w/Kayla McKeon and Ashley Helsing
202. Living In Technicolor & Listening To Your Heart w/Jennifer Varanini Sanchez
THROWBACK: Following the Lead of Self-Advocates (ft. Matthew Schwab)
201. Sofia Sanchez: Filming ‘The Hunger Games’, Her New Book, Self-Advocacy, & Middle School
200. It's our 5 year anniversary!
199. What We Wish We Knew, Had, & Told Ourselves In The First Years…
198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools
197. Exposing The Roots (Racism, Ableism, Microagressions, + More)
196. Couples Q & A! (ft. our husbands)
195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)
194. Undoing Ableism & Telling True Stories with April Aguilera (writer of "For Paloma")
193. Lets catch up!
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