We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support278. Can A Person With Down Syndrome Travel The World? (w/ Erik & Emily Orton)
BONUS: Why Is The Use Of Terms Like "Mentally Disabled" As An Insult So Harmful?
277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson)
276. What Can't People With Down Syndrome Do?
275. Advocacy In Action: Amanda Owen on Building a Strong Community
274. Are We Losing the True Meaning of Volunteering?
273. Breaking Down Barriers: The Parent’s Role In IEP Success (w/Ashley Barlow)
272. What Do We Wish We Knew Before Our First IEP Meeting?
271. Can Our Kids Have Authentic Friendships In Inclusive Settings? (w/Kathleen Downes)
270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig)
269. What Are We Really Measuring?: Redefining Worth & The IQ Test (w/Pepper Stetler)
268. First Responders and Teacher of Patience: A Lesson in Understanding
267. What Is It Like To Have A Sibling With Down Syndrome? (Featuring Our Kids!)
266. From Sibling Love to Community Change (w/Taylor Gardner Chaney)
265. Brotherly Love: From Childhood Adventures to Adult Dreams (w/Matthew & Thomas Von Der Ahe)
264. Healing and Hope: Navigating Down Syndrome Regression Disorder (w/ Dr. Santoro & Dr. Quinn)
263. Designs that Dance: A Tale of Friendship and Creativity (w/Dance Happy Designs)
262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard
261. Fearless Together: Lessons In Bravery, Hope, & Resilience (w/David and Andrew Olshine)
260. What Did We Learn From This School Year?
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