We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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257. Brother Do You Love Me?: A Journey of Resilience and Repair (w/Manni & Reuben Coe)
256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association)
255. A Haircut Beyond The Chair w/Vernon Jackson
254. The Next Step: Navigating Healthcare Transitions for Individuals with Down Syndrome (w/ Dr. Emily Johnson)
253. What If You Don’t Feel “Lucky”?
252. Planning For The Future: Involving Siblings In The Decision-Making Process
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243. Still, The Best We Can (w/Heather & Josh Avis)
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